CVIers Discussion Group for Parents , Parents and Older Children and Carers

Communication, Information, Information, Advocacy
A group for parents of children and children with Cerebral/Cortical Visual Impairment (CVI) supported by clinicians, researchers and teachers of the visually impaired. 

The purpose of this group is to provide a centralized space for individuals -- including family members, researchers, doctors, educators, and more -- to discuss topics related to CVI. We specifically hope to create a safe environment in which we can achieve the following:

  1. Parents will be able to discuss the challenges they face with their children with CVI. We aim to provide a forum for parents to share their own experiences while learning from other parents. 
  2. Older children will be able to discuss their own experiences living with CVI. They may contribute their own strategies for tackling shared difficulties, or choose to elicit advice from their peers. 
  3. Everyone will gain access to reliable and understandable information regarding CVI. We will also invite experts to share their knowledge.
  4. Researchers will provide updates on recent developments in the field of CVI. 

Group meetings will be held every 6 - 8 weeks via a secure online platform sponsored by Smith Kettlewell Eye Research Institute (SKERI), San Francisco and hosted by Dr.Chandna's SeeLab at SKERI. We expect meetings to last for approximately 1.5 hours. 

Our next meeting is: Monday, November 27th, 2023 from 12-1:30 pm PST

Here is the agenda for the meeting:




10 minutes

Welcome to Participants

Purpose of the CVI @ SKI Group

Guidelines for Q and A


10 minutes

Self-Introduction (newcomers)


           15 minutes

Topical Discussion #6

Vision in the Early Years  



25 minutes


Andrea Montano

Developmental Vision Specialist 

NMSBVI Early Childhood Programs

Topic:  Early Identification of CVI : Supporting Families on Their Journey  



30 minutes




Thanks & Dates for next meeting.

January 2024 

Feedback forms coming!


Register by clicking here if you are interested in joining our discussion group, or if you would like to learn more about CVIers Discussion Group.

If you are interested in joining or have any questions, email us at


To give you a better understanding of what these meetings are about, here is Dr.Chandna's talk on Motion Perception in CVI from our meeting on August 21st 2023: