A group for parents of children and children with Cerebral/Cortical Visual Impairment (CVI) supported by clinicians, researchers and teachers of the visually impaired.
The purpose of this group is to provide a centralized space for individuals -- including family members, researchers, doctors, educators, and more -- to discuss topics related to CVI. We specifically hope to create a safe environment in which we can achieve the following:
- Parents will be able to discuss the challenges they face with their children with CVI. We aim to provide a forum for parents to share their own experiences while learning from other parents.
- Older children will be able to discuss their own experiences living with CVI. They may contribute their own strategies for tackling shared difficulties, or choose to elicit advice from their peers.
- Everyone will gain access to reliable and understandable information regarding CVI. We will also invite experts to share their knowledge.
- Researchers will provide updates on recent developments in the field of CVI.
Group meetings will be held every 6 - 8 weeks via a secure online platform sponsored by Smith Kettlewell Eye Research Institute (SKERI), San Francisco and hosted by Dr.Chandna's SeeLab at SKERI. We expect meetings to last for approximately 1.5 hours.
Our next meeting is: Monday, November 27th, 2023 from 12-1:30 pm PST
Here is the agenda for the meeting:
Welcome to Participants
Purpose of the CVI @ SKI Group
Guidelines for Q and A
Topical Discussion #6
Vision in the Early Years
Developmental Vision Specialist
NMSBVI Early Childhood Programs
Topic: Early Identification of CVI : Supporting Families on Their Journey
Thanks & Dates for next meeting.
Feedback forms coming!
If you are interested in joining or have any questions, email us at firstname.lastname@example.org.
To give you a better understanding of what these meetings are about, here is Dr.Chandna's talk on Motion Perception in CVI from our meeting on August 21st 2023: