Community

Dr. Arvind Chandna, Senior Scientist (Clinical)

CVI Essentials

We invite you to our Second CVI@SKI Meeting CVI Essentials- presented by Dr. Arvind Chandna  A Parent’s Journey- Premjith Balakrishnan  Guided interactive discussion How You Can Participate How to Rename: If you haven’t already, please rename yourself in Zoom to include your role, for example, if you are a parent, CVIer, clinician, educator, etc. To do this, select the “Participants” button. When the list of participants comes up, click the three dots after your own name, and “More.”  You’ll see “rename” is one of the options. Or, please let Dev know and he can help with renaming. Put your question in the chat Raise hand feature Verbally How to Rename: To ensure the space be accessible to all, thank you very much for using one of the three ways to make your request to speak known, and hold your comments until you are recognized, so we can hear each valuable comment. Meeting Guidelines This meeting is for Parents of Children with CVI, and Older Children with CVI (with their parents and carers). Adults with CVI who wish to share their journey to help Parents and their Children with CVI are very welcome! In a Supporting Role, attending by invitation, are Clinicians, Researchers, Teachers, and Educators. Here are some guidelines to help the meeting run smoothly and clarify expectations: It is very helpful for blind and CVI attendees if we speak our name before giving our comment, such as “Katie here,” or “Katie speaking.” This CVIers Discussion Group includes older children and adults discussing their own lived experiences of CVI and parents of CVIers discussing their observations and experiences of their children. In this space, participants may not reinterpret or deny the personal experiences shared by participating CVIers or parents. What is shared in this meeting is often personal. Please do not share material from this meeting outside of this meeting. Please stay muted until you would like to speak. Strictly no distribution of recordings or the Zoom link, downloading or copying any content at the meeting or after the meeting. If you have questions or suggestions for future topics, you are warmly invited to write to us at seelab@ski.org. Recording disclosure The meeting today will be recorded. A video version of the prepared presentations will become available online with permission from our speakers. The discussion section will be available as audio recording, on request. You will soon see a button informing you that recording has begun; if you wish not to be recorded, you may turn off your video, or leave the meeting. Click here to check the time in your time zone Register here by clicking the link: I am interested in CVI@SKI meetings You may write to us at seelab@ski.org

A Forum (Part I)

The Smith-Kettlewell Eye Research Institute (SKI) 2318 Fillmore St, San Francisco, CA, 94115 Facilitated by Dr Chandna’s CVI Lab @SKI with Educators at Blind Babies Foundation (BBF) This month’s topics Reading and CVI- Dr. Saeideh Ghahghaei Parent Speakers- Christian Kabrich and Anna Quant Group Discussion- What’s in your toolbox? How You Can Participate How to Rename: If you haven’t already, please rename yourself in Zoom to include your role, for example, if you are a parent, CVIer, clinician, educator, etc. To do this, select the “Participants” button. When the list of participants comes up, click the three dots after your own name, and “More.”  You’ll see “rename” is one of the options. Or, please let Dev know and he can help with renaming. Put your question in the chat Raise hand feature Verbally How to Rename: To ensure the space be accessible to all, thank you very much for using one of the three ways to make your request to speak known, and hold your comments until you are recognized, so we can hear each valuable comment. Meeting Guidelines This meeting is for Parents of Children with CVI, and Older Children with CVI (with their parents and carers). Adults with CVI who wish to share their journey to help Parents and their Children with CVI are very welcome! In a Supporting Role, attending by invitation, are Clinicians, Researchers, Teachers, and Educators. Here are some guidelines to help the meeting run smoothly and clarify expectations: It is very helpful for blind and CVI attendees if we speak our name before giving our comment, such as “Katie here,” or “Katie speaking.” This CVIers Discussion Group includes older children and adults discussing their own lived experiences of CVI and parents of CVIers discussing their observations and experiences of their children. In this space, participants may not reinterpret or deny the personal experiences shared by participating CVIers or parents. What is shared in this meeting is often personal. Please do not share material from this meeting outside of this meeting. Please stay muted until you would like to speak. Strictly no distribution of recordings or the Zoom link, downloading or copying any content at the meeting or after the meeting. If you have questions or suggestions for future topics, you are warmly invited to write to us at seelab@ski.org. Recording disclosure The meeting today will be recorded. A video version of the prepared presentations will become available online with permission from our speakers. The discussion section will be available as audio recording, on request. You will soon see a button informing you that recording has begun; if you wish not to be recorded, you may turn off your video, or leave the meeting. Click here to check the time in your time zone Register here by clicking the link: I am interested in CVI@SKI meetings You may write to us at seelab@ski.org

First CVI@SKI meeting

How to First CVI@SKI meeting (Maybe Arvind has an agenda? It was the first meeting and he did most of it. We invite you to our Second CVI@SKI meeting at Smith-Kettlewell coming soon. CVI Essentials- presented by Dr. Arvind Chandna  A Parent’s Journey- Premjith Balakrishnan Guided interactive discussion How You Can Participate How to Rename: If you haven’t already, please rename yourself in Zoom to include your role, for example, if you are a parent, CVIer, clinician, educator, etc. To do this, select the “Participants” button. When the list of participants comes up, click the three dots after your own name, and “More.”  You’ll see “rename” is one of the options. Or, please let Dev know and he can help with renaming. Put your question in the chat Raise hand feature Verbally state your name To ensure the space be accessible to all, thank you very much for using one of the three ways to make your request to speak known, and hold your comments until you are recognized, so we can hear each valuable comment. Meeting Guidelines This meeting is for Parents of Children with CVI, and Older Children with CVI (with their parents and carers). Adults with CVI who wish to share their journey to help Parents and their Children with CVI are very welcome! In a Supporting Role, attending by invitation, are Clinicians, Researchers, Teachers, and Educators. Here are some guidelines to help the meeting run smoothly and clarify expectations: It is very helpful for blind and CVI attendees if we speak our name before giving our comment, such as “Katie here,” or “Katie speaking.” This CVIers Discussion Group includes older children and adults discussing their own lived experiences of CVI and parents of CVIers discussing their observations and experiences of their children. In this space, participants may not reinterpret or deny the personal experiences shared by participating CVIers or parents. What is shared in this meeting is often personal. Please do not share material from this meeting outside of this meeting. Please stay muted until you would like to speak. Strictly no distribution of recordings or the Zoom link, downloading or copying any content at the meeting or after the meeting. If you have questions or suggestions for future topics, you are warmly invited to write to us at seelab@ski.org. Recording disclosure The meeting today will be recorded. A video version of the prepared presentations will become available online with permission from our speakers. The discussion section will be available as audio recording, on request. You will soon see a button informing you that recording has begun; if you wish not to be recorded, you may turn off your video, or leave the meeting. Click here to check the time in your time zone Register here by clicking the link: I am interested in CVI@SKI meetings You may write to us at seelab@ski.org

Dr. Yue-Ting Siu, San Francisco State University

Tactile math lessons from preschool to college using the RERC 3p’s project as a jumping-off point

Our new time for just over an hour of Information, Discussion, Research, and Advocacy with TVI powerhouse from San Francisco State University Dr. Yue-Ting Siu  How You Can Participate How to Rename: If you haven’t already, please rename yourself in Zoom to include your role, for example, if you are a parent, CVIer, clinician, educator, etc. To do this, select the “Participants” button. When the list of participants comes up, click the three dots after your own name, and “More.”  You’ll see “rename” is one of the options. Or, please let Dev know and he can help with renaming. Put your question in the chat Raise hand feature Verbally state your name To ensure the space be accessible to all, thank you very much for using one of the three ways to make your request to speak known, and hold your comments until you are recognized, so we can hear each valuable comment. Meeting Guidelines This meeting is for Parents of Children with CVI, and Older Children with CVI (with their parents and carers). Adults with CVI who wish to share their journey to help Parents and their Children with CVI are very welcome! In a Supporting Role, attending by invitation, are Clinicians, Researchers, Teachers, and Educators. Here are some guidelines to help the meeting run smoothly and clarify expectations: It is very helpful for blind and CVI attendees if we speak our name before giving our comment, such as “Katie here,” or “Katie speaking.” This CVIers Discussion Group includes older children and adults discussing their own lived experiences of CVI and parents of CVIers discussing their observations and experiences of their children. In this space, participants may not reinterpret or deny the personal experiences shared by participating CVIers or parents. What is shared in this meeting is often personal. Please do not share material from this meeting outside of this meeting. Please stay muted until you would like to speak. Strictly no distribution of recordings or the Zoom link, downloading or copying any content at the meeting or after the meeting. If you have questions or suggestions for future topics, you are warmly invited to write to us at seelab@ski.org. Recording disclosure The meeting today will be recorded. A video version of the prepared presentations will become available online with permission from our speakers. The discussion section will be available as audio recording, on request. You will soon see a button informing you that recording has begun; if you wish not to be recorded, you may turn off your video, or leave the meeting. Click here to check the time in your time zone Register here by clicking the link: I am interested in CVI@SKI meetings You may write to us at seelab@ski.org

Professor Gordon N. Dutton MD, FRCS, Ed (Hon), FRCS Glas, FRCOphth

CVIers Discussion Group for Parents and Children with Cerebral Visual Impairment (CVI)

A CVI Conversation with Professor Gordon Dutton Professor Gordon N. Dutton, Pediatric Ophthalmologist, Emeritus Professor of Visual Science, Glasgow Caledonian University, Glasgow, Scotland UK. Professor Gordon Dutton is a Pediatric Ophthalmologist who worked at the Royal Hospital for Sick Children in Glasgow is one of the few the leading expert in cerebral visual impairment. Professor Dutton and has edited and contributed to three textbooks and several publications on cerebral visual impairment in children, as well as the information websites for teachers and parents called the CVI Society and CVI Scotland. We are privileged to welcome him to our special 12th Meeting.How You Can ParticipateHow to Rename: If you haven’t already, please rename yourself in Zoom to include your role, for example, if you are a parent, CVIer, clinician, educator, etc. To do this, select the “Participants” button. When the list of participants comes up, click the three dots after your own name, and “More.”  You’ll see “rename” is one of the options. Or, please let Dev know and he can help with renaming.Put your question in the chatRaise hand featureVerbally state your nameTo ensure the space be accessible to all, thank you very much for using one of the three ways to make your request to speak known, and hold your comments until you are recognized, so we can hear each valuable comment.Meeting GuidelinesThis meeting is for Parents of Children with CVI, and Older Children with CVI (with their parents and carers). Adults with CVI who wish to share their journey to help Parents and their Children with CVI are very welcome! In a Supporting Role, attending by invitation, are Clinicians, Researchers, Teachers, and Educators. Here are some guidelines to help the meeting run smoothly and clarify expectations:It is very helpful for blind and CVI attendees if we speak our name before giving our comment, such as “Katie here,” or “Katie speaking.”This CVIers Discussion Group includes older children and adults discussing their own lived experiences of CVI and parents of CVIers discussing their observations and experiences of their children. In this space, participants may not reinterpret or deny the personal experiences shared by participating CVIers or parents.What is shared in this meeting is often personal. Please do not share material from this meeting outside of this meeting.Please stay muted until you would like to speak.Strictly no distribution of recordings or the Zoom link, downloading or copying any content at the meeting or after the meeting.If you have questions or suggestions for future topics, you are warmly invited to write to us at seelab@ski.org.Recording disclosureThe meeting today will be recorded. A video version of the prepared presentations will become available online with permission from our speakers. The discussion section will be available as audio recording, on request. You will soon see a button informing you that recording has begun; if you wish not to be recorded, you may turn off your video, or leave the meeting.Click here to check the time in your time zoneRegister here by clicking the link: I am interested in CVI@SKI meetingsYou may write to us at seelab@ski.org

San Francisco skyline at dusk

Functional Vision and Accessibility (FVA) Conference

Smith-Kettlewell Eye Research Institute presents a hybrid conference centered on translational research to optimize functional vision and accessibility. The meeting’s goal is to encourage integration of multi-disciplinary approaches to evaluating visual dysfunction and its consequences. The conference also aims to bring stakeholders (those experiencing vision loss and blindness) and those doing translational research (scientists, clinicians, and inventors) to prioritize future research directions for diagnosis and treatment/interventions. A special feature of this conference will be to consider the spectrum from visual impairment to blindness and evaluate the relative merits of maximizing residual vision, visual restoration and the use of remaining senses for accessing information from the environment.Visit the Conference page here for more information.

Black father and white mother playing with a child

CVI@SKI Discussion Group for Parents and Children with Cerebral Visual Impairment (CVI)

The CVI@SKI Discussion Group will hold its next meeting on Monday, April 10th at 4:00 p.m. Pacific Standard Time. The CVI@SKI Discussion Group will hold its next meeting on Monday, April 10th at 4:00 p.m. Pacific Standard Time. The meeting is a place where families, educators, researchers, and clinicians can meet in a virtual environment to connect and learn from one another. Click here to check time in your time zone. Register your interest here, click this link: I am interested in CVI@SKI meetings A Zoom link and meeting information will be sent on registration.  

Zoom Brown Bag: "Solving Perplexing PowerPoint Puzzles: A presentation within a presentation."

Zoom Brown Bag: “Solving Perplexing PowerPoint Puzzles: A presentation within a presentation.”

Abstract – This seminar will cover many fun, sometimes perplexing, features of PowerPoint. Topics include cropping videos, animating text, sharpening shapes, taming icons, punching holes in shapes (!), working with layers, and managing morphs. All of these will be demonstrated with reference to a PowerPoint presentation about what parents of children with CVI have reported regarding their children’s ability to read – research coming out of Dr. Arvind Chandna’s lab.

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What is Orientation and Mobility Training and How Can it Help Me with Tasks of Daily Living?”

Abstract – Gina di Grazia will introduce/review the concepts of Orientation & Mobility (O&M) training to the group. Join Dr. Don Fletcher, one of the world’s leading authorities on Low Vision Rehabilitation, to share experiences and learn about the things that help you maintain a full and happy life while living with low vision. This support group is completely free. Each month there is a new topic to discuss. There will also be opportunities to learn about the innovative research on low vision happening at Smith-Kettlewell. 

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The Fifteenth Annual Low Vision Rehabilitation Study Group. A two day event 8:00 AM – 4:00 PM

Purpose:  An informal gathering of clinicians/clinical researchers in low vision rehab ·         share techniques ·         brainstorm ideas for new treatments or investigations ·         enjoy collegiality Location:  San Francisco, California ·         Hosted by Dr. Don Fletcher, Dr. Gus Colenbrander, and Dr. Tiffany Chan ·         sponsored by Smith-Kettlewell Eye Research Institute (SKERI) and California Pacific Medical Center ·         meeting is held at Smith-Kettlewell Eye Research Institute – 2318 Fillmore St., San Francisco, CA 94115 Rooms available at: ·         Holiday Inn Golden Gate, Address: 1500 Van Ness Ave, San Francisco, CA 94109, Phone :          ( 415) 441-4000. Rates should be ~ $200.00+ per night. The Hotel is within walking distance of Smith-Kettlewell and has great views. ·         Kabuki Hotel, Address: 1625 Post St, San Francisco, CA 94115, Phone (415) 922-3200. Rates should be ~ $200 per night.           An old favorite now remodeled – close to SKERI and good restaurants on Fillmore St. ·         Rodeway Inn – Civic Center, 860 Eddy Street, San Francisco CA 94109. Phone: (415) 474-4374. Basic accommodation. Rate           should be in the ~ $100. ·         Uber from any of these hotels to the meeting for under $10 Dates:  Feb 7 and Feb 8, 2020 ·         Friday and Saturday – 3 hour morning and afternoon discussion groups ·         Fly in Thursday evening and out on Sunday. stay longer if you like, San Francisco is a magnificent city Who is invited? Anyone actively involved in vision rehabilitation NOT for newcomers wanting to get started (sorry – get your feet wet then join us)   Registration Fee:  NONE (zero, no charge, $0.00 – what a deal!)  You find your way here, cover your hotel and food – that’s the cost of it   Contact Don Fletcher at floridafletch@msn.com to save a spot for     Friday/Saturday Attire and Attitude:  Informal –  Neckties, degrees, affiliations, and stuffiness must be checked at the door. Format:  Informal ·         bring a case or technique to discuss ·         no set agenda – we will divide the time between all comers ·         if time allows we can discuss and solve all the problems facing the field ·         divided into physician and therapist groups with some joint sessions Promise:  We won’t always agree but we’ll have a good time as a group that has a common interest/passion.