CVI@SKI: CVI Discussion Group for Parents and Children with CVI

Communication, Information, Information, Advocacy
A group for parents of children and children with Cerebral/Cortical Visual Impairment (CVI) supported by clinicians, researchers and teachers of the visually impaired. 

The purpose of this group is to provide a centralized space for individuals -- including family members, researchers, doctors, educators, and more -- to discuss topics related to CVI. We specifically hope to create a safe environment in which we can achieve the following:

  1. Parents will be able to discuss the challenges they face with their children with CVI. We aim to provide a forum for parents to share their own experiences while learning from other parents. 
  2. Older children will be able to discuss their own experiences living with CVI. They may contribute their own strategies for tackling shared difficulties, or choose to elicit advice from their peers. 
  3. Everyone will gain access to reliable and understandable information regarding CVI. We will also invite experts to share their knowledge.
  4. Researchers will provide updates on recent developments in the field of CVI. 

Group meetings will be held every 6 - 8 weeks via a secure online platform sponsored by Smith Kettlewell Eye Research Institute (SKERI), San Francisco and hosted by Dr.Chandna's SeeLab at SKERI. We expect meetings to last for approximately 1.5 hours. 

To give you a better understanding of what these meetings are about, here is Dr.Chandna's talk on Motion Perception in CVI from our meeting on August 21st 2023:


Our next meeting is: Monday, October 2nd, 2023 from 12-1:30 pm PST

The agenda for the meeting is as follows:




10 minutes

Welcome to Participants

Purpose of the CVI @ SKI Group

How will these meetings run?

How will we contribute?


10 minutes

Self-Introduction (new)


10 minutes

Topical Discussion #5

CVI Clinical Knowledge Series

Sound and Vision



30 minutes

          How have you used music to learn? How was the best way to learn music through your younger childhood years?

          Can you experience Auditory Processing. Disorder or challenges, and excel at music?

          How do you learn music without visually reading print music?

Invited Experts

30 minutes




Closing minutes

Thanks & Dates for next meetings


Sign Up by clicking here if you are interested in joining our discussion group, or if you would like to learn more about CVI@SKI.

If you are interested in joining or have any questions, email us at